What you can do when just diagnosed?

 

"Hurrah, finally some one believes me, I am not going crazy, I am not a hypocondriac, I have Sjogren's Syndrome." Yes, diagnosis is difficult and it is just the first step. The next step is realizing that SS is usually not life threatening but it is a chronic condition that needs on going attention.

Just as we get a handle on it the symptoms can change, flare ups occur and new symptoms arrive. We must constantly re evaluate our health to get the best quality of life.

Get a good relationship with a G.P. and a rheumatologist who will help you maintain a reasonable quality of life.

A healthy diet and a healthy lifestyle may help manage your symptoms.

You need to be actively involved in your own care to find the best ways to relieve your symptoms. Smoking, poor diet, alcohol and certain medicines may aggrevate your condition.

 

Educate yourself about Sjogren's Syndrome:

  • Is there any treatment?
  • What Can I Do About Dry Mouth?
  • What Can I Do About Dry Eyes?
  • Medicines and Dryness
  • Alternative treatments
  • Anti inflammatory diet
  •  

    Read 'A Body Out of Balance. Understanding and Treating Sjogren's Syndrome' by Ruth Fremes, M.A. & Nancy Carteron, M.D.FACR

    Lynne's Sjogren Syndrome Page where you can read the stories of over 40 women and men who have SS

    Ask questions or share.

    Daily Strength forums for Sjogren's where you can

    Sjogren's World invite you to use any of their resources: E-Pals, discussion forums, live chats, and e-mail lists, as well as read medical links and articles on neurological components of Sjogren's Syndrome.

    Connect to others who have SS. Many countries have Sjogren's Syndrome support groups.

    Here is a list of groups. You can add a group by going to the "Contact us" page.