What you can do when just diagnosed?


"Hurrah, finally some one believes me, I am not going crazy, I am not a hypocondriac, I have Sjogren's Syndrome." 

Yes, diagnosis is difficult and it is just the first step. The next step is realizing that SS is usually not life threatening but it is a chronic condition that needs on going attention.

Just as we get a handle on it the symptoms can change, flare ups occur and new symptoms arrive. We must constantly re evaluate our health to get the best quality of life. 

Here are some suggestions that can help when you are newly diagnosed with Sjogren's Syndrome:

Get a good relationship with a G.P. and a rheumatologist who will help you maintain a reasonable quality of life.

A healthy diet and a healthy lifestyle may help manage your symptoms.

You need to be actively involved in your own care to find the best ways to relieve your symptoms. Smoking, poor diet, alcohol and certain medicines may aggrevate your condition.

Educate yourself about Sjogren's Syndrome:

  • Is there any treatment?
  • Doctors who treat Sjogren's
  • The basics
  • What Can I Do About Dry Mouth?
  • What Can I Do About Dry Eyes?
  • Dryness
  • Protect your voice
  • Medicines and Dryness
  • Alternative treatments
  • Anti inflammatory diet
  • Skin concerns

    Read 'A Body Out of Balance. Understanding and Treating Sjogren's Syndrome' by Ruth Fremes, M.A. & Nancy Carteron, M.D.FACR

    Read the stories of women and men who have SS

    Ask questions or share at our active facebook page.

    Daily Strength forums for Sjogren's where you can ask questions

    Sjogren's World invite you to use any of their resources:  discussion forums, live chats, and e-mail lists, as well as read medical links and articles on neurological components of Sjogren's Syndrome.

    Connect to others who have SS. Many countries have Sjogren's Syndrome support groups. Here is a list of groups. You can add a group by going to the "Contact us" page.