Personal Sjogren's Stories

 My husband was diagnosed with this Sjogrens /lupus/ asthma.  He has had many new problems since diagnosed this yr but the worst is the persistant coughing and gagging every (20 sec).


my story
I have Sjogren's - it took me 7 years to be diagnosed - at 1st they thought I had MS as a lot of sympyoms are the same. Mine is in remission right now I think - hard to tell as symptoms change so much.
Posted by Le anne

my story
My opthalmologist discovered Sjogren's because of my dry gritty eyes - I manage okay with drops and biotene toothpaste but nothing really helps the gnawing tiredness
Posted by June

They know what i have is autoimmune but they don't know what it is! I've had so many tests. just trying to treat symptoms now. Dry eyes and mouth and skin and burning tongue and aching joints are my symptoms.
Posted by Joan

Sjogens and hair loss
I have been just diagnose two months ago and since then almost all of my hair is falling out. It is so depressing. My doctor has me on salagen and restasis. Ten years ago they said I had fibromyagia and suffered alot with that. I am 67yrs old I don"t feel old but some days I feel just terrible. Thanks for listening,God bless, Diane
Posted by Diane