Skin concerns in Sjogren's Syndrome (Read this text or watch the video below)

About half of the people who have Sjögren's have dry skin. 

Some experience only itching, but it can be severe. 

Others develop cracked, split skin that can easily become infected. Infection is a risk for people with itchy skin, too, particularly if they scratch vigorously. The skin may darken in infected areas, but it returns to normal when the infection clears up and the scratching stops.

To treat dry skin, apply heavy moisturizing creams and ointments three or four times a day to trap moisture in the skin. 

Lotions, which are lighter than creams and ointments, aren't recommended because they evaporate quickly and can contribute to dry skin. 

Also, doctors suggest that you take only a short shower (less than 5 minutes), use a moisturizing soap, pat your skin almost dry, and then cover it with a cream or ointment. 

If you take baths, it's a good idea to soak for 10 to 15 minutes to give your skin time to absorb moisture. 

Having a humidifier in the bedroom can help hydrate your skin, too. 

If these steps don't help the itching, your doctor might recommend that you use a skin cream or ointment containing steroids.

Some patients who have Sjögren's, particularly those who have lupus, are sensitive to sunlight and can get painful burns from even a little sun exposure, such as through a window. 

So, if you're sensitive to sunlight, you need to wear sunscreen (at least SPF 15) whenever you go outdoors and try to avoid being in the sun for long periods of time.


skin symptoms in sjogrens syndrome

Read more about other complications of Sjogren's syndrome:




COLD WEATHER TIPS FROM by people with SS: 
  • wear gloves
  • wear lots of layers of clothing
  • some say wear cotton layer next to skin, some say synthetic
  •  next layer could be wool or polar fleece.  Outer layers will ideally be wind-resistant and water resistant if needed
  • wear turtlenecks and scarves to protect glands in neck
  • Make sure your boots are loose enough to leave room for wool or thermal socks or tights
  • use moisture retaining sunglasses from ophthalmologist
  • use a humidifier in the home
  • use a non preserved eye gel
  • drink warm water
  • warming food as digestion  builds internal heat.
  • microwaveable heat pads​​​​​​​
  • beware of heaters and air conditioners that dry you out
  • place a container of water near the heater as it will act the same as a humidifier allowing the moisture to go back in the air